March 3rd, 2017
We partnered with patients, families, and palliative care clinicians to develop an integrated urology-palliative care clinic for patients with metastatic cancer. We assessed clinician satisfaction with a multidisciplinary palliative care clinic model.
We conducted semi-structured interviews with 18 clinicians who practice in our integrated clinic. We analyzed transcripts using a multistage, cutting-and-sorting technique in an inductive approach based on grounded theory analysis. Finally, we administered a validated physician job satisfaction survey.
February 8th, 2017
January 20th, 2017
The study examined the impact of a peer navigator program (PNP) developed by a community-based participatory research team and used with a group of African Americans with serious mental illness who were homeless.
Sixty-seven research participants were randomly assigned to receive PNP or treatment as usual (control) for one year. Data on general health and mental health, recovery, and quality of life were collected at baseline and at four, eight, and 12 months.
Findings from group × trial analyses of variance of omnibus measures of the four constructs showed significant impact over the year for participants in PNP compared with those in the control group, with analyses showing small to moderate effect sizes: general health status (η2=.24), psychological experience of physical health (η2=.42), recovery (η2=.36), and quality of life (η2=.14). These differences emerged even though both groups showed significant reductions in homelessness and increases in insurance coverage.
Implications for improving in-the-field health care for this population are discussed. Whether these results occurred because navigators were peers per se needs to be examined in future research.
January 13th, 2017
Since the enactment of the Affordable Care Act (ACA), many people remain uninsured. While studies have examined this population, few have explored patients’ experiences seeking insurance. To elucidate these individuals’ perspectives, we surveyed patients (n = 80) at the University of Michigan Student-Run Free Clinic concerning their activity accessing insurance. Over half of respondents had sought insurance in the past 6 months; 57 % of respondents qualified for Medicaid by self-reported income (≤138 % FPL) and all but one were eligible for tax credits on the Health Insurance Marketplace. However, only 35 % of apparently Medicaid-eligible respondents had recently applied. There was no significant difference in the rate of applying for those above the income cutoff (p = 0.901). Perceived expense of plans and belief of ineligibility for Medicaid discouraged respondents from actively seeking insurance. Personalized outreach emphasizing new Medicaid eligibility requirements and tax credits may be needed to facilitate Medicaid enrollment for some uninsured persons under the ACA.
October 14th, 2016
Cancer is the leading cause of death in Puerto Rico, suggesting a need for improved strategies, programs, and resources devoted to cancer prevention. Enhanced prevention needs in Puerto Rico were initially identified in pilot studies conducted by the Ponce School of Medicine (PSM) in collaboration with the H. Lee Moffitt Cancer Center (MCC). In the current study, we used community engagement to identify specific needs in cancer prevention and education and strategies to create culturally attuned, effective cancer prevention education programs. A total of 37 participants attended a community forum and were assigned to one of three discussion groups: patients/survivors (n = 14); family/caregivers (n = 11); or healthcare providers (n = 12). Most participants were women (73 %), over 35 years of age, and a majority were married (58 %) and had a university education (81 %). The sessions were recorded and transcribed and analyzed for key themes. Participants wanted improved awareness of cancer prevention in Puerto Rico and believed cancer prevention education should start early, ideally in elementary school. Learn more
September 13th, 2016
Researchers face challenges in retaining underserved populations for web-based research, a recent study finds.
The findings were published online July 28 in Genetics in Medicine.
A study that provided online genetic ancestry results to participants found that low-income Americans and people who did not finish high school were less likely to log in, said Sarah Hartz, MD, PhD, lead study author and assistant professor of psychiatry at the Washington University School of Medicine in St. Louis’ Department of Psychiatry.
Hartz said the results are troubling to her in light of the Precision Medicine Initiative, a national program launched under President Barack Obama in 2015 that is dedicated to recruiting a diverse group of Americans for genetic research, she said.
“We have to recruit these people,” Hartz told The Nation’s Health. “If we don’t it’s going to be worse…it will be very difficult to reduce disparities in the future.” Learn more
August 31st, 2016
— Bill Barberg (@billbarberg) July 21, 2016
August 24th, 2016
How to Read Beyond the Headline: 9 Essential Questions to Evaluate Medical News Ben Goldacre writing in Bad Science classified science reporting as falling into three categories – wacky stories, scare stories and breakthrough stories; the last of which he views as ”a more subtly destructive category of science story”. Whether you get your news through digital or traditional means, you can’t fail to notice the regularity with which journalists report on the latest medical breakthroughs. Some of these reports are sensationalist (“coffee causes cancer”) and fairly easy to dismiss; but do you know how to separate fact from fiction when it comes to less sensationalist headlines?
July 7th, 2016
Despite striking ethnic disparities in the incidence and mortality of diseases like cancer and respiratory disease, minorities are not well represented in clinical trials. A paper out in the journal PLOS Medicine says two main barriers to achieving diverse clinical trials are the expense of recruiting minority subjects, and fears of exploitation in medical research.
June 10th, 2016
The Mayo Clinic Center for Clinical and Translational Science (CCaTS) is pleased to announce that Aaron Mangold, M.D., is the recipient of the 2016 Community Health: Assessment and Improvement Measures Program (CHAMP) award.
Dr. Mangold’s project, Improving Access to Care Through the Establishment of a Local, Tele-Dermatology Network, addresses an identified community health need, and will engage stake-holders in all phases of his research. Dr. Mangold is assistant professor of Dermatology, and senior associate consultant in Dermatology at Mayo Clinic in Scottsdale.
Through its CHAMP program, CCaTS supports research projects that address community health needs as identified by local community health needs reports such as the Olmsted County, Minnesota, Community Health Needs Assessment 2013 report or the local Mayo Clinic Hospital Community Health Needs Assessment reports.
June 9th, 2016
An estimated 43.6 million American adults—nearly one in five—have mental illness. Anxiety and mood disorders, including depression, are the most common forms. While these conditions are usually treatable, clinicians often don’t have a good way to predict who will respond to which therapies, so patients may have to try different types of treatments.
June 8th, 2016
As issues around diversity, equity, inclusion and cultural competency have risen to the forefront, many grantmakers are trying to make their processes more equitable, both in terms of dollars awarded and in who receives the money. But, from the perspective of grassroots organizations led by and serving communities of color, common foundation and nonprofit practices can feel disingenuous and even counterproductive to this goal. If grantmakers want marginalized communities to be engaged, they need to fund, trust and support them directly, believes Vu Le. This means resisting the tendency to practice “trickle-down community engagement.” Le will speak candidly about this and other well-intentioned but harmful behaviors in the sector. He’ll suggest ways to make funding more accessible, lift up individuals and communities of color, and demonstrate trust that communities have solutions
March 23rd, 2016
The Collective Impact Forum & Results for America present a panel discussion to celebrate the release of "Community Engagement Matters (Now More Than Ever)," an article co-authored by Melody Barnes and Paul Schmitz, published in the Spring issue of the Stanford Social Innovation Review. The article features original research that highlights the importance of engaging community when implementing data-driven, evidence-based approaches and provides a framework for how to do so effectively.
John Kania, Managing Director, FSG
learn more http://collectiveimpactforum.org/
January 21st, 2016
Introduction: Large-scale distributed data networks consisting of diverse stakeholders including providers, patients, and payers are changing health research in terms of methods, speed and efficiency. The Vaccine Safety Datalink (VSD) set the stage for expanded involvement of health plans in collaborative research Learn more
January 7th, 2016
Engaging community members in problem-solving solutions to issues that affect them is one of the fundamental principles of public health. The most effective way to achieve public health goals, especially the elimination of disparities in health status, is to actively engage those experiencing the problems in every aspect of addressing them. Community engagement means involving community members in all activities--from identifying the relevant issues and making decisions about how to address them, to evaluating and sharing the results with the community. The information on this Web site provides background, tips and tools for effective community engagement.