October 14th, 2016

Community Engagement for Identifying Cancer Education Needs in Puerto Rico

By Miguel Valdez Soto miguel

Cancer is the leading cause of death in Puerto Rico, suggesting a need for improved strategies, programs, and resources devoted to cancer prevention. Enhanced prevention needs in Puerto Rico were initially identified in pilot studies conducted by the Ponce School of Medicine (PSM) in collaboration with the H. Lee Moffitt Cancer Center (MCC). In the current study, we used community engagement to identify specific needs in cancer prevention and education and strategies to create culturally attuned, effective cancer prevention education programs. A total of 37 participants attended a community forum and were assigned to one of three discussion groups: patients/survivors (n = 14); family/caregivers (n = 11); or healthcare providers (n = 12). Most participants were women (73 %), over 35 years of age, and a majority were married (58 %) and had a university education (81 %). The sessions were recorded and transcribed and analyzed for key themes. Participants wanted improved awareness of cancer prevention in Puerto Rico and believed cancer prevention education should start early, ideally in elementary school.  Learn more

Tags: community engagement in research

September 30th, 2016

Healthcare Hashtag Project

By Miguel Valdez Soto miguel

Healthcare Hashtag Project, a free open platform for patients, caregivers, advocates, doctors and other providers that connects them to relevant conversations and communities.

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September 13th, 2016

Advertisement Involving under-served groups in web-based research a struggle, study finds

By Miguel Valdez Soto miguel

Natalie McGill

Researchers face challenges in retaining underserved populations for web-based research, a recent study finds.

The findings were published online July 28 in Genetics in Medicine.

A study that provided online genetic ancestry results to participants found that low-income Americans and people who did not finish high school were less likely to log in, said Sarah Hartz, MD, PhD, lead study author and assistant professor of psychiatry at the Washington University School of Medicine in St. Louis’ Department of Psychiatry.

Hartz said the results are troubling to her in light of the Precision Medicine Initiative, a national program launched under President Barack Obama in 2015 that is dedicated to recruiting a diverse group of Americans for genetic research, she said.

“We have to recruit these people,” Hartz told The Nation’s Health. “If we don’t it’s going to be worse…it will be very difficult to reduce disparities in the future.” Learn more

August 31st, 2016

A practical strategic framework for dismantling institutional racism. You can help

By Miguel Valdez Soto miguel

August 24th, 2016

How to Read Beyond the Headline: 9 Essential Questions to Evaluate Medical News

By Miguel Valdez Soto miguel

How to Read Beyond the Headline: 9 Essential Questions to Evaluate Medical News Ben Goldacre writing in Bad Science classified science reporting as falling into three categories – wacky stories, scare stories and breakthrough stories; the last of which he views as ”a more subtly destructive category of science story”. Whether you get your news through digital or traditional means, you can’t fail to notice the regularity with which journalists report on the latest medical breakthroughs. Some of these reports are sensationalist (“coffee causes cancer”) and fairly easy to dismiss; but do you know how to separate fact from fiction when it comes to less sensationalist headlines?

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July 7th, 2016

Lack Of Diversity In Clinical Trials Presents Possible Health Consequences

By Miguel Valdez Soto miguel

Despite striking ethnic disparities in the incidence and mortality of diseases like cancer and respiratory disease, minorities are not well represented in clinical trials. A paper out in the journal PLOS Medicine says two main barriers to achieving diverse clinical trials are the expense of recruiting minority subjects, and fears of exploitation in medical research.

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June 10th, 2016

CCaTS Announces CHAMP Awardee for 2016

By Miguel Valdez Soto miguel

The Mayo Clinic Center for Clinical and Translational Science (CCaTS) is pleased to announce that Aaron Mangold, M.D., is the recipient of the 2016 Community Health: Assessment and Improvement Measures Program (CHAMP) award.

Dr. Mangold’s project, Improving Access to Care Through the Establishment of a Local, Tele-Dermatology Network, addresses an identified community health need, and will engage stake-holders in all phases of his research. Dr. Mangold is assistant professor of Dermatology, and senior associate consultant in Dermatology at Mayo Clinic in Scottsdale.

Through its CHAMP program, CCaTS supports research projects that address community health needs as identified by local community health needs reports such as the Olmsted County, Minnesota, Community Health Needs Assessment 2013 report or the local Mayo Clinic Hospital Community Health Needs Assessment reports.

http://intranet.mayo.edu/charlie/inside-mayo-clinic-research/2016/06/10/ccats-announces-champ-awardee-for-2016/

June 9th, 2016

Drawing on Mental Health "Experts-by-Experience"

By Miguel Valdez Soto miguel

An estimated 43.6 million American adults—nearly one in five—have mental illness. Anxiety and mood disorders, including depression, are the most common forms. While these conditions are usually treatable, clinicians often don’t have a good way to predict who will respond to which therapies, so patients may have to try different types of treatments.

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June 8th, 2016

"Want to Support Communities of Color? Stop Trickle-Down Community Engagement"

By Miguel Valdez Soto miguel

As issues around diversity, equity, inclusion and cultural competency have risen to the forefront, many grantmakers are trying to make their processes more equitable, both in terms of dollars awarded and in who receives the money. But, from the perspective of grassroots organizations led by and serving communities of color, common foundation and nonprofit practices can feel disingenuous and even counterproductive to this goal. If grantmakers want marginalized communities to be engaged, they need to fund, trust and support them directly, believes Vu Le. This means resisting the tendency to practice “trickle-down community engagement.” Le will speak candidly about this and other well-intentioned but harmful behaviors in the sector. He’ll suggest ways to make funding more accessible, lift up individuals and communities of color, and demonstrate trust that communities have solutions

April 14th, 2016

save the date for Our Community Our Health #OCOH

By Miguel Valdez Soto miguel

March 23rd, 2016

Community Engagement Matters (Now More Than Ever)

By Miguel Valdez Soto miguel

The Collective Impact Forum & Results for America present a panel discussion to celebrate the release of "Community Engagement Matters (Now More Than Ever)," an article co-authored by Melody Barnes and Paul Schmitz, published in the Spring issue of the Stanford Social Innovation Review. The article features original research that highlights the importance of engaging community when implementing data-driven, evidence-based approaches and provides a framework for how to do so effectively.

Featured Speakers:

  • Melody Barnes, Chair, Aspen Forum for Community Solutions and Senior Fellow, Results for America
  • Maia Jachimowicz, Vice President of Evidence-Based Policy Implementation, Results for America and former Policy Director, City of Philadelphia
  • Michele Jolin, Co-Founder and CEO, Results for America

John Kania, Managing Director, FSG

  • Dr. Michael McAfee, Vice President for Programs, PolicyLink
  • Dr. Patrick McCarthy, President and CEO, Annie E. Casey Foundation
  • Paul Schmitz, Senior Advisor, Collective Impact Forum

learn more http://collectiveimpactforum.org/

February 18th, 2016

#Mixed #marriages are changing the way we think [...]

By Miguel Valdez Soto miguel

Tags: asian, Hispanic, imigrant, race, research

January 21st, 2016

The Pioneering Role of the Vaccine Safety Datalink Project (VSD) to Advance Collaborative Research and Distributed Data Networks

By Miguel Valdez Soto miguel

Abstract

Introduction: Large-scale distributed data networks consisting of diverse stakeholders including providers, patients, and payers are changing health research in terms of methods, speed and efficiency. The Vaccine Safety Datalink (VSD) set the stage for expanded involvement of health plans in collaborative research Learn more

January 7th, 2016

Minnesota Department of Health Community Engagement Home

By Miguel Valdez Soto miguel

Community Engagement
Engaging community members in problem-solving solutions to issues that affect them is one of the fundamental principles of public health. The most effective way to achieve public health goals, especially the elimination of disparities in health status, is to actively engage those experiencing the problems in every aspect of addressing them. Community engagement means involving community members in all activities--from identifying the relevant issues and making decisions about how to address them, to evaluating and sharing the results with the community. The information on this Web site provides background, tips and tools for effective community engagement.

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CE home

Tags: Community Engagement, resources and tools

November 6th, 2015

Who Is Multiracial? Depends on How You Ask

By Miguel Valdez Soto miguel

A Comparison of Six Survey Methods to Capture Racial Identity

Consider, for example, a man whose mother is Asian and whose father is white. This may seem like someone who could easily be categorized as multiracial. But if this man was raised with little or no interaction with his white relatives or had experiences that were more closely aligned with those of the Asian community, he may well select “Asian” and nothing else when describing his race. Furthermore, some adults may have relatives of different races farther back in their family tree. While some people may think to include a more distant relative of a different race when asked about their racial background, others may not, even if they are aware of their family history.

With this in mind, we set out to test six different ways of defining a population of mixed-race adults to survey, using as our primary vehicle Pew Research Center’s American Trends Panel (ATP), a probability-based, nationally representative online panel of adults in the United States. We tested these different approaches with impaneled individuals who participated in more than one Pew Research Center survey, allowing us to examine how the same individual might have changed his or her responses depending on the question asked.

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Tags: census, identity, Multiracial, research

September 30th, 2015

Discuss a national topic: Marijuana use among youth

By Miguel Valdez Soto miguel

September 22nd, 2015

Our Community Our Health

By Miguel Valdez Soto miguel

Join us on September 24

OCOH is a town hall meeting series that shares innovative research findings to foster conversation and mutual understanding with the community.

ocohfull

click here to participate

our participate on twitter using the the #OCOH hashtag

 

Tags: Community Engagement, conversation, marijuana, research findings

August 28th, 2015

Mayo's "renegade" research team

By Miguel Valdez Soto miguel

 

Victor Montori has a very special light fixture in his office.

Co-workers say Montori’s Get-the-Party-Started accessory first appeared sometime after Christmas. The Mayo endocrinologist and world-traveling proponent of kinder and more careful medicine had just relocated his team of scientists to a new workspace. The Plummer Building! An open floor plan! White boards for brainstorming sessions, a Keurig machine, couch, and Nerf basket! But it was a little small. “You know what would make this place great?” he declared. “A disco ball!” read more

victors magazine

Tags: KER Unit, Minimally Disruptive Medicine, Montori, shared decision-making

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